Sharp Waves: ILAE's epilepsy podcast
Epilepsy affects more than 50 million people. Every day. Sharp Waves brings you stories about people with epilepsy, physicians treating epilepsy, and researchers studying the condition. We'll cover the latest research, challenges to diagnosis and treatment, and issues from around the world.
Podcasting since 2021 • 92 episodes
Sharp Waves: ILAE's epilepsy podcast
Latest Episodes
A novel patient-reported outcome measure for epilepsy: The impacts of seizures and treatment
Is there a fast, simple way to measure whether someone with epilepsy is doing "better" or "worse" compared with a past clinic visit? Not really. Seizure count is often considered a standard, but multiple small seizures may have less impact on s...
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18:48
Social work in epilepsy: Closing the treatment gap and improving quality of life - Dr. Rugare Mugumbate
Closing the epilepsy treatment gap relies heavily on social and cultural acceptance of epilepsy as a brain disorder that can be managed with medication or other therapies. Dr. Rugare Mugumbate discusses the five disadvantages faced by people wi...
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30:50
Somatic genetic epilepsies: Dr. Christian Bosselmann
Somatic genetic epilepsies arise from mutations that occur early in fetal development. They are usually only detectable by genetic sequencing of tissue. For these epilepsies, the timing of the mutation is key: For example, research has shown th...
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31:31
Research recap: Empiric immunotherapy for highly refractory epilepsy: Dr. Elisabeth Doran
In a retrospective study of 31 patients with highly refractory epilepsy, 29% had more than a 50% reduction in seizures for at least 12 months after being treated with immunotherapy. Three of these patients became seizure free. Other than a tren...
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12:54
Genetic testing: Variants of uncertain significance (VUS) - Dr. Gemma Carvill
What are variants of uncertain significance (VUS) in epilepsy genetic testing? How are they defined, and can those definitions change over time? Sharp Waves talks with Dr. Gemma Carvill as part of our genetic testing series.RESOURCES<...
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34:22